Dengue fever collaboration By A/Prof. Bu-Sung Lee, francis (TEIN & SingAREN) Ms. Helga Spitelar (DANTE) When did this all started ? • Started at Maastricht, Netherlands in June 2013 – How can we look at a specific topic that might have a global interest ? – Dengue fever was suggested – TEIN took on the task to kick-off with a dengue fever workshop Post TNC 2013 • How do we reach out to the community ? • Techniques: – TEIN governors (to get NRENs support) – Global PR – Websites – International dengue fever projects – Chance meetings with clinicians Result All the different contact avenues were important. • Some speakers were contacted and recommended by NREN representatives • Websites. Provide contact for “cold” call. Not very successful. • Global_PR group was instrumental Finding the right platform • TEIN*CC and APAN have worked together over the years. • Agreed to jointly hold a workshop: – APAN meeting in Bandung, Indoensia provided the venue and local logistics. – TEIN*CC provided the funding support and organizational support. Technology • Not all the presenters were on-site. • VC for remote participation (ideal opportunity to show how NRENs can facilitate collaboration and exchange costand time-efficiently) • We use both H.323 and skype to support the presentations. • Issues – Some sites were not familiar with the use of H.323 – Need to have a number of trial runs. – Coordination to mute was an issue. • Might use Vidyo, used by the Telemedicine group in the future. Dengue Fever – let’s stop it (Medical WG session) Organisers: Molly Yap (TEIN*CC) Helga Spitaler (DANTE) Bu-Sung Lee, Francis(SingAREN) 20 Jan 2014 Bandung, Indonesia Joint APAN-TEIN*CC Dengue Fever Workshop Objective: The workshop set out to provide a forum for participants to share experiences and best practices and to exchange ideas around how to manage, prevent and fight this infectious tropical disease. Time Program 1:00 pm Welcome 1:10 pm Part 1: Presentations 2:30 pm Part 2: Round-table discussion 3:20 pm Action items 3:30 – 4:00 Tea-Break Bandung, Indonesia Part 1: Presentations – “Managing Dengue cases”, Prof. Leo Yee Sin, Director, Institute of Infectious Diseases and Epidemiology, Tan Tock Seng Hospital; Clinical Director, Communicable Disease Centre and Lead Principal Investigator, STOP Dengue TCR Flagship Programme (www.stopdengue.sg) (Remote presentation) – “Dengue: Climate Change, Evolution and Transmission “ by Dr. Raul Destura, Director, Institute of Molecular Biology and Biotechnology at the UP National Institutes of Health, Philippines – “Dengue Fever: Surveillance, forecasting and response in Pakistan” Dr.Saleem M. Rana, PhD Health Services Academy Cabinet Division, Government of Pakistan. Chak Shahzad, Islamabad – “Correlates of a Dengue Specific Immune Response” by Dr Neelika Malavige, Department of Microbiology, Faculty of Medical Sciences of the University of Sri Jayewardenepura (USJ), Sri Lanka (Remote presentation) – “Dengue fever in family practice: Misconception and misinterpretation". Dr. A. B. M. Abdullah Dean, Faculty of Medicine, Professor of Medicine, Bangabandhu Sheikh Mujib Medical University, Dhaka, Bangladesh. – “Let’s get serious: STOP the ‘war’ on Dengue”, Prof. Sazaly Abu Bakar, Department of Medical Microbiology, Faculty of Medicine University of Malaya, Director WHO Collaborating Center for Arbovirus Reference and Research Tropical Infectious Diseases Research and Education Centre (TIDREC) (http:[email protected]) Bandung, Indonesia Part 2: Round-table – Dr.Saleem M. Rana, PhD Health Services Academy Cabinet Division, Government of Pakistan. Chak Shahzad, Islamabad – Dr. Sonam Wangchuk Microbiologist/Chief Laboratory Officer, Public Health Laboratory Department of Public Health Ministry of Health – Thimphu, Bhutan – Dr. Basu Dev Pandey, MD, PhD; Infectious Disease Specialist & Dengue Specialist, National Focal person for Dengue; Medical Superintendent; Ministry of Health Ramechap Hospital, Nepal. – Dr Rose Nani Binti Mudin Public Health Physician, Head of Vector Borne Disease Sector, Disease Control Division, Ministry of Health Malaysia – Prof. Leo Yee Sin, Tan Tock Seng Hospital, Lead Principal Investigator, STOP Dengue TCR Flagship Programme (www.stopdengue.sg) (Remote). – Dr. Raul Destura, Director, Institute of Molecular Biology and Biotechnology at the UP National Institutes of Health, Philippines – Dr. A. B. M. Abdullah Dean, Faculty of Medicine, Professor of Medicine, Bangabandhu Sheikh Mujib Medical University, Dhaka, Bangladesh. – Dr Neelika Malavige, Department of Microbiology, Faculty of Medical Sciences of the University of Sri Jayewardenepura (USJ), Sri Lanka (Remote). – Dr. Sheryl Maher, HE & Training Developer/Senior HE & Training Developer, OFFICE OF LEARNING AND TEACHING, CHARLES DARWIN UNIVERSITY, Australia.(Remote) – Dr. Asma Abdul Latif, Assistant Professor, Lahore College for Women University, Pakistan – Dr. Nobuyuki Shimono, Director, Center for the study of Global Infection, Kyushu University Hospital, Japan (Remote) – Prof. Sazaly Abu Bakar, Department of Medical Microbiology, Faculty of Medicine University of Malaya, Director WHO Collaborating Center for Arbovirus Reference and Research Tropical Infectious Diseases Research and Education Centre (TIDREC) (http:[email protected]) Bandung, Indonesia The Bandung workshop • 5 clinicians/ researchers/public health officials from MY, BD, PK, PH in person, 4 from SG, JP, LK, AU remotely • NREN reps also attended and provided insight into what research networks are and how NRENs can provide support • Rep from APAN telemedicine working group also attended The Bandung workshop • Dengue fever management & research has national focus, but there is a need to collaborate internationally to stop its spread • Follow up activities to focus on specific topics (dengue fever is multi-disciplinary) e.g. clinical case management • Network requirements differ, generally limited bandwidth demands – Videconferencing / webconferencing – But also mathematic modelling to produce dengue fever outbreak detection system Bandung, Indonesia Post-Dengue fever workshop AARNet’s Annual Report: Featured Dengue Workshop from an Australian perspective Following the Dengue Workshop in Bandung, AARNet contacted leading researchers in Australia to gain better understanding of networking needs Rolling out the workshop model Start regional, then go global! What have we learned ? • We get better understanding as to how research networking can help this ‘marginal’ user community collaborate better in tackling this global disease • Scientific communities are usually not well aware of the network. • Global_PR community can help reach a wider audience. • Community-building • Global case study Moving forward • How to keep the momentum? • How can we maximize PR value of this community building activities? • How can we apply the experience/lessons learnt to other topics and when reaching out to other fairly unknown user communities? Discussion Discussion • It affect us all. • PR value to a marginal community. PR to create greater Awareness. • Other communities that can learn from this experience. What are other areas ? Cultural. • Provide them with tools. Eg videoconference. • How do we engage and support them.