Connecting to Opportunities: The NLM Update

Report
Connecting to Opportunities:
The NLM Update
Betsy L. Humphreys
Deputy Director
US National Library of Medicine
National Institutes of Health, Department of Health & Human Services
[email protected]
Connected Opportunities
•
•
•
•
•
Electronic Health Records ↔ Knowledge Sources
Clinical & Translational Research
Disaster preparedness & response
Health Literacy, K-12 Education
Recruitment to Our Profession
45 CFR 170.314(a)
2014 EHR Certification Criteria
Standards for linking to external information sources
Clinical decision
support
• Specified that the use of the HL7 Context-Aware Knowledge Retrieval
(“Infobutton”) standard would be optional as part of the linked referential
decision support capability (and adopted Information Guides)
• Limited configuration variations to be just based on a user’s role
Patient-specific
education
resources
Adopted HL7 Infobutton standard and the URL and SOAP-based
implementation guides
=
Incentive for decision support product
development
=
Opportunity for librarians to assist in
assembling the best resources for institution
More opportunity to link to link to
NLM resources via APIs…
MedlinePlus Connect
Problem, medication, or lab
code-based request
EHR/Health IT
System
Consumer health information
targeted response
Patient portal
Clinical system
MedlinePlus
Connect
Slide 5
Recent MedlinePlus Connect
Enhancements
• Diagnosis Codes
 Links to related information for patients in Web
Service response
 Responses to many more codes
• Medication Codes
 Dramatically increase in number of codes we can
respond to & improved precision
 Direct links to matching pages of medication
information in Web Service response
 Just Released: Spanish responses, too
Slide 7
www.nlm.nih.gov/healthit/meaningful_use.html
•
•
•
•
MedlinePlus Connect
RxNorm
SNOMED CT
LOINC
Slide 8
A New Knowledge Source http://livertox.nih.gov/
And a rapidly expanding one…
10
Connected Opportunities
•
•
•
•
•
Electronic Health Records ↔ Knowledge Sources
Clinical & Translational Research
Disaster preparedness & response
Health Literacy, K-12 Education
Recruitment to Our Profession
12
13
Refined recruitment status searching
Better access to history of changes
More help in interpreting records …
18
More information for data submitters
20
ClinicalTrials.gov training
• Eight presentations with audio and slides
•Available under “Online Presentations” at
http://clinicaltrials.gov/ct2/manage-recs/present
1. Overview of
ClinicalTrials.gov
2. Key FDAAA Issues
3. PRS Information and Data
Review Process
4. PRS Accounts and
Registration
Results
5. Participant Flow Module
6. Baseline Characteristics
Module
7. Outcome Measures and
Statistical Analysis Module
8. Adverse Events Module
21
NLM Supplements to Research Grants
for Informationist Services
• 8 administrative supplement awards made by
NLM to research grantees of Institutes of
Aging, Cancer, Dental, Deafness, Eye & NLM
– Awards bring 15 librarian information specialists
into research settings, and measure the value of
their contributions
– Three of the librarians are former NLM Associate
Fellows
– Co-funding from Deafness & Cancer Institutes
Some Examples
• R01 EY-21590, Grundfest, Warren H. UCLA. Grant title: Non-contact, THz
Sensing of Corneal Hydration. Lisa Federer, Louise Darling Library
• R01 CA-132935, Luckmann, Roger. U Mass Worcester. Grant title:
Promoting Breast Cancer Screening in Non-Adherent Women. Sally Gore,
Souter Library
• R01 CA-116477 Sgouros, George. Johns Hopkins University. Grant title:
Dose-Response in Radionuclide Therapy. Victoria Goode, Welch Medical
Library
• R01 DC-011329, Svirsky, Mario A. New York University. Grant title: Clinical
Management of Cochlear Implant Patients with Contralateral Hearing
Aids. Theodora Bakker & Karen Hanson, NYU Health Sciences Library
• R01 AG-040100, Szanton, Sarah. Johns Hopkins University. Grant title:
Reducing disability via a Bundled Bio-Behavioral-Environmental Approach.
Claire Twose & Jennifer Darragh, Welch Medical Library
Connected Opportunities
•
•
•
•
•
Electronic Health Records ↔ Knowledge Sources
Clinical & Translational Research
Disaster preparedness & response
Health Literacy, K-12 Education
Recruitment to Our Profession
You have experts in your midst…
Connected Opportunities
•
•
•
•
•
Electronic Health Records ↔ Knowledge Sources
Clinical & Translational Research
Disaster preparedness & response
Health Literacy, K-12 Education
Recruitment to Our Profession
More tools to reach more populations
After
School
Activity
Club
http://sis.nlm.nih.gov/outreach/k12.html
•
•
•
•
Developed by cross curriculum middle
school teachers
 Two Science
 One English
 One Social Studies
Tox Town as core research tool
Science inquiry integrated with social
action
Six units
1. Water quality
2. Air quality
3. Chemicals in Your Home
4. Food Safety
5. Runoff, Impervious Surfaces,
and Smart Development
6. The Great Debate: Bottled vs.
Tap Water
Slide 28
GeneEd
• Portal of genetic resources for
high school students and
teachers
• National Association of Biology
Teachers survey defined the
need
• Partnership between:
– NLM – SIS, NCBI, Lister Hill
- Genetics Home Reference
– National Human Genome Research
Institute
– ICF Genetics subject experts
Slide 29
Exhibitions - a great outreach tool
Soon to have traveled to all 50 states…
www.nlm.nih.gov/nativevoices
traveling version in development
Connected Opportunities
•
•
•
•
•
Electronic Health Records ↔ Knowledge Sources
Clinical & Translational Research
Disaster preparedness & response
Health Literacy, K-12 Education
Recruitment to Our Profession
WE are our own best recruiters
2012/2013 NLM Associate Fellows
2012 MLA/NLM Spectrum Scholar
“Working at NLM has truly
been life changing. The
encouragement I received
from many of the folks here
really inspired me to go into
health sciences
librarianship. Prior to
coming to NLM, the thought
of becoming a librarian
never even crossed my
mind.” - October 12, 2012
Thank you.
Betsy L. Humphreys, MLS
Deputy Director
[email protected]

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