What is a CIL?

Developing a Centre for
Independent Living for Lambeth
For Lambeth Physical and Sensory Impairment
Partnership Board, 21st September 2010
David Strong
What is a CIL?
• A CIL (Centre for Independent Living) is an
organisation - or a network of organisations which are run and controlled by disabled
people. It works to the Social Model of
Disability and provides services and other
activities in the key areas of the
internationally recognised 12 Pillars of
Independent Living
The Social Model of Disability
• The Social Model of Disability was created by disabled people as a
response to society’s traditional view of disability. The traditional
view was based on a medical model approach in which disabled
people are seen as the problem; something that is “wrong” and
needs to be cured. The social model of disability takes a rights
based approach and it states that everyone is equal and that
disability is imposed on people with impairments and health
conditions by a society which creates barriers to equality. These
barriers prevent disabled people participating in society and restrict
their opportunities. These barriers go beyond physical barriers i.e.
access to buildings and includes barriers to education, work and full
societal participation. The social model empowers disabled people
to challenge society to remove these barriers.
The 12 Pillars of Independent Living
As internationally agreed by the independent living movement these are:
• Appropriate and accessible information
• An adequate income
• Appropriate and accessible health and social care provision
• A fully accessible transport system
• Full access to the environment
• Adequate provision of technical aids and equipment
• Availability of accessible and adapted housing
• Adequate provision of personal assistance
• Availability of inclusive education and training
• Equal opportunities for employment
• Availability of independent advocacy and self-advocacy
• Availability of peer counselling
Disabled People’s Organisations
• A Disabled People’s Organisation (DPO) is an organisation that
has a membership and managing board with a majority of
disabled people, and whose objectives are the rights and
equality of disabled people.
• The Department of Health uses the terminology “User Led
Organisations” (ULOs) for which it has identified a range of
“design criteria” :
* The value base – eg promoting the Social Model and independent living
* Governance and management (eg composition of the Management
Committee, membership)
*Types of services (eg information, advice,
peer support, advocacy)
Services and activities a CIL could offer
Information and advice
Advocacy and self-advocacy
Independent living support
Support with access to housing,
Education and employment
A campaigning voice
Involvement in design, planning & review of services
Disability equality training
Access auditing
Peer support and mentoring
Opportunities for volunteering
Helping smaller disabled people’s groups to develop
Networking, events and social meetings
Policy drivers - National
• Improving the Life Chances of Disabled People
Recommendation 4.3 (Cabinet Office 2005)
“By 2010 each locality should have a user-led organisation
modelled on existing CILs”
• Putting People First (Transformation of Adult Social Care)
Milestone 1 (Effective partnerships with People using
services, carers and other local citizens)
“That every council area has at least one user-led organisation
who are directly contributing to the transformation to
personal budgets. (By December 2010)”
Policy drivers - Local
• The role of the CIL in contributing to Lambeth’s
Information, Advice and Advocacy Strategy in relation to
disabled people
• Connection with Lambeth as a Cooperative Council, eg
“Principle 3: Citizens and communities empowered to design and
deliver services and play an active role in their local community”
• Connection with Lambeth’s Pathfinder Mutual initiative
with Lambeth Resource Centre
What has happened so far
• Steering Group set up and meeting monthly : representation from
Lambeth Council (Active Communities Team); DPOs (DASL, People First
Lambeth, Alliance for Inclusive Education, Lambeth MIND, Lambeth PanDisability Forum); Parents for Inclusion
• Secondment of member of Active Communities Team to work on the
project with DPOs
• Initial proposal for the design of the CIL made by DPOs – to be
developed through consultation
• Terms of reference, draft consultation questions and engagement plan
• Application by DASL to Access to Volunteering for funding to support
new disabled volunteers including role within CIL development
The early vision for the Lambeth CIL
• For all people who identify themselves as disabled (across the range
of impairments and health conditions)
• For disabled people of all ages
• Local Disabled People’s Organisations working together in a
partnership to develop services and activities
• Not just a single building – a mix of physical and virtual resources –
with the Accord Centre as a key location
• Committed to making the United Nations Convention on the Rights of
Persons with Disabilities a reality
• Working closely with carers and others who wish to be allies of
disabled people in their struggle for independence, inclusion and
human rights
The next steps
• Engagement with the Co-operative Council Commission
• Development of discussions between the Council, Lambeth
Accord and DPOs about Lambeth Accord’s role in relation to the
• First phase of public consultation on the vision, principles and
broad design for the CIL
• Strengthen the Steering Group to ensure input from other
groups (eg Deaf people)
• Dialogue with commissioners to align CIL services with the
Information, Advice and Advocacy Strategy and other key
service developments
CIL Contacts
David Strong, Director
Disability Advice Service Lambeth
336 Brixton Road
Tel: 020 7642 0040
Email: [email protected]
Elaine Aherne, Health and Wellbeing Partnerships Development Manager
Active Communities
LB Lambeth Adults' & Community Services
Tel: 020 7926 4704
Mobile: 07943 811 532
Email: [email protected]

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