HOSA State Advisors Management Conference 9/24/14 Agenda • • • • • • • LLS Mission What are blood cancers? Research Advancements Fire with Fire Video School & Youth Next Steps Questions? Our Mission The Leukemia & Lymphoma Society (LLS) exists to find cures and ensure access to treatments for blood cancer patients. We are saving lives not someday, but today. • LLS funds research to advance more breakthrough therapies for blood cancer patients. • LLS is the voice for all blood cancer patients, and is working to ensure access to treatments for all cancer patients. Our Powerful Chapter Network 61 chapters – more than twenty million volunteers in the U.S. and Canada. What is Blood Cancer? What is Leukemia? About Blood Cancers • More than one million Americans currently have a blood cancer. • Blood cancers are the third most fatal form of cancer, only lung and colon cancer kill more Americans. Every 3 minutes, someone in the U.S. is diagnosed with a blood cancer Every 10 minutes, someone loses their battle with blood cancer • Leukemia is the leading cause of cancer-related deaths in children and young adults under the age of 20. Focused on Cures • LLS is focused on finding cures. Today, we are closer than ever to finding cures for many kinds of blood cancer. • To date, LLS has invested more than $1 billion in research to advance therapies and save lives. • Thanks to research and access to better treatments, survival rates for many blood cancer patients have doubled, tripled and even quadrupled since 1960 • Between 2000 and 2013, almost 40 percent (31 of 81) of the new cancer drugs approved by the FDA were first approved to treat patients with a blood cancer. Many of these drugs are now being used, or being tested, for other forms of cancer or other serious, nonmalignant diseases Join today: SCHOOLANDYOUTH.ORG START RAISING MONEY TODAY! Since the 1960s, the survival rate for many blood cancers has doubled, tripled and even quadrupled 5-Year Survival Rates 91% What Makes Us Unique? LLS funds research to advance more breakthrough therapies for blood cancer patients. LLS-funded researchers from University of Pennsylvania and Children’s Hospital of Philadelphia continued to present more promising data three and a half years after beginning a clinical trial demonstrating the first successful and sustained use of genetically engineered T cells to fight leukemia. The team presented their latest findings at the American Society of Hematology’s annual meeting in New Orleans. The latest results of studies involving both adults and children with advanced blood cancers for whom all previous therapies had failed, showed that among the first 59 patients who received this investigational, personalized cellular therapy, known as CTL019, 89 percent had a complete response rate. LLS has invested $15 million in this team’s work, with an additional $6 million committed through 2017. Fire With Fire Video More work needs to be done Despite progress, more than a third of blood cancer patients still do not survive five years after their diagnosis. WE NEED YOUR HELP! School & Youth Programs School & Youth Programs provide students an opportunity to experience service learning and the power of spare change in the fight against blood cancers. More than 29,000 schools and 15 million students from kindergarten to high school throughout the U.S. and Canada participate – 25% of all schools! School & Youth Programs reach over 12 million families and 900,000 educators with an empowering message of hope in the cure for cancer. The Cornerstone of School & Youth is Pennies for Patients • Schools register for School & Youth to teach their students leadership, teamwork, and the importance of giving back. • Students, along with their parents, collect spare change over a 3 week period of the school's choosing during October through March. • LLS provides everything a school needs to run the program, including lesson plans that meet service learning and education standards, class & individual collection boxes, educational video, posters, program guide, and prizes and awards for classrooms and schools. • LLS conducts educational kick-off assemblies to teach children about blood cancer and get them excited about the Campaign. LLS also offers planning meetings to teachers and student groups to help plan the Campaign. • Each school is given an honored hero, a local child who is a survivor of blood cancer, to raise funds in honor of. Many schools have students write letters or draw pictures for their honored hero. High School Program • Getting high school students to think outside the box! • Student organizations are asked to meet three challenges: Raise Awareness: how your school raised awareness for blood cancer patients and the progress to find a cure (photos, video, PowerPoint, etc.) Have a FUNdraiser: 2 provided by LLS and at least one your school creates on your own. Community Connection -show us how you got the word out to your community (newspaper, email, announcement at sports game, etc.) • Planning takes preparation! Planning meetings and will get your group jump started. Join today: SCHOOLANDYOUTH.ORG/XX LLS. FOCUSED ON SAVING LIVES. Next Steps Chapter conducts activities for Leukemia and Lymphoma Society, which may include volunteer service and fundraising. Chapter submits monetary donation and HOSA EVENT REPORT form to Leukemia and Lymphoma Society and receives written confirmation of the donation. Chapter submits a copy of the same form (one per activity) with documentation to the state advisor by the published state deadline. Event is judged at the state level and state-level recognition is presented. State advisors verify information and submit an official list of chapters with approved hours and monetary donations to National HOSA by May 15. Chapters submitted by the State Advisor by May 15 are awarded Certificates of Recognition or Certificates of Merit at the NLC. • Connect with your LLS chapter staff • Set up planning meeting • Identify rival HS to “challenge” • Send funds to LLS upon program completion Our Hero Students can see real results and how their involvement has actually helped save lives. Meet Owen leukemia survivor At 3 years old, Owen was diagnosed with acute lymphoblastic leukemia. Because of lifesaving treatments, Owen has reason to smile and is anticipating the fun and excitement of kindergarten. Join today: SCHOOLANDYOUTH.ORG We have one goal: A world without cancers A world without cancers not someday, but today! Thank you! QUESTIONS?