for NDIS - National Respite Association Inc

Further Unravelling Psychosocial
Disability: MH and the NDIS
The Lived Experience of the NDIS at the
NSW Hunter Trial Site
National Respite Association Conference - 23 October 2014
Tina Smith – Senior Policy Advisor/Sector Development, MHCC
(NDIS Mental Health Analyst in partnership with the NSW Mental Health Commission)
National NDIS Rollout
430K Australians will receive Tier 3 funded support at full
roll-out and 57K will have psychosocial disability (PSD)
– Year 1 – 2013/14
• NSW, Victoria, Tasmania, SA trial sites
– Year 2 – 2014/15
• WA, NT, ACT trial sites
– Year 3 – 2015/16
– Years 4 & 5 – 2016/18
• Queensland roll-out
• Full national rollout
MHCC NDIS Partnership with the NSW MH
Year 1 partnership objectives are to better understand …
How will PSD be understood and included under the NDIS?
The wider NDIS and health services interface (eg, physical health, substance
People with co-existing difficulties (eg, intellectual, physical, sensory and other
The suitability of the assessment tool/s
Contribute to the national discourse regarding the situating of psychosocial
disability within the NDIS
… what is the NDIS and how it will affect people living with
mental health concerns?
NSW Hunter NDIS Trial Site
Trial commenced 1July 2013 and there have
been high levels of mental MH/PSD activity
10K people in Newcastle, Lake Macquarie and
Maitland LGAs (1,300 with high levels of
psychosocial disability?)
– Yr 1 2013/14: 3K people Newcastle LGA
– Yr 2 2014/15: 5K people Lake Macquarie LGA
– Yr 3 2015/16: 2K people Maitland LGA
Potentially 1,300 people with PSD in trial site and
19K in NSW at full roll-out
439 people with PSD nationally at June 2015 (159
in NSW; 12% of 1,300)
Further unravelling psychosocial
Five objectives supported by 13 additional interdependent activities ….
Learning from consumers, carers and service providers in the launch site
Liaison with the NDIA, HNELHD/MH , NSW FaCS/ADHC, NDS, etc.
Reconciling ‘permanent disability’ with the philosophy and practice of psychosocial disability
and & recovery support service delivery
Tracking ‘transitions’, ‘phasings’ & ‘new’ participants accessing the NDIS (PHaMS)
Interface between NDIA and the new Partners in Recovery program
Understanding ‘in-scope’ and ‘out-of-scope’ community sector programs
What the NDIS means for people that are not Tier 3 eligible (Tier 2?)
… establishment of the
Hunter NDIS and MH ‘Community of Practice’
Financial Contributions to NDIS
(ie, ‘in-scope’ services)
• National
– Personal Helpers and Mentors (PHAMS; 100% ‘in-scope’ for
– Partners in Recovery (PIR: 70% ‘in-scope’ for NDIS)
– Mental Health Respite: Carer Support (50% ‘in-scope’ for NDIS)
– Day to Day Living Program (D2DL; 35% ‘in-scope for NDIS).
– FaCS/ADHC funded programs (including transfers to
community sector)
– SVDP ‘Ability Links’ (Tier 2 services)
– NSW Health funded programs?
Hunter NDIS & MH ‘COP’ Forum
• Hosted by MHCC & the NSW Mental Health Commission
• Meetings held:
15 October 2013
23 January 2014
20 March 2014
17 June 2014
30 September 2014
• Sharing and reflecting on experiences of the NDIS
including relationship development with NDIA
• Updates from HNEMHS, NDIA & MHA
Who belongs to the COP?
267 people at the end of
September 2014:
• 121 community sector
workers from the Hunter
• 59 community sector workers
from outside the Hunter
• 64 other people from the
Hunter (mostly HNEMHS staff)
• 20 other people from outside
the Hunter
• 3 consumers
Josh Fear/MHCA, Suzanne Punshon/NDIA, Tina
Smith/MHCC and Sage Telford/NSW Mental
Health Commission at the Hunter NDIS and
Mental Health ‘Community of Practice’ Forum.
Consumer & carer representation and
participation in the NDIS/NDIA
• 15/10 – community sector specific meeting
• Concerns identified at 23/1 COP Forum
– Organised a meeting with consumers and carers at
• Addressed at 20/3 COP Forum
– Q&A Panel with a consumer, carer & service provider
• Addressed at 17/6 COP Forum
– Presentations by NSW CAG & ARAFMI
• 30/9 COP Forum
– This forum highlighted consumer and carer
experiences/stories of NDIS and a presentation by the
NSW Ombudsman
MH Family and Carer Issues
• NDIS ‘Supports for Informing Informal Supports’
Operational Guideline (January 2014)
• Arafmi Australia position statement (July 2014)
– Promote shared/supported decision making
• Carers NSW issues paper (September 2014)
– 10 recommendations including parallel carer needs
• Commonwealth funded Family MH Support
Services & NSW Ministry of Health funded MH
Family and Carer Support Program
– not ‘in-scope’ for NDIS
MH Respite Issues
• Respite not provided by NDIS
– NDIA position is that the participant’s funded Tier 3
services and supports naturally result in respite
• National MH Respite: Carer Support Program
50% ‘in-scope’ for NDIS
– What does this mean in practice for people both
eligible and ineligible for Tier 3 funded supports?
• CMHA MH respite project (Vicserv)
– MH carers require more flexible respite and support
than other disability groups
MH Family and Carer Experiences in
NSW NDIS Trial Site
People with MH problems are
reluctant to engage with the
Without services a long time
Difficult to trust and engage
Lack confidence
Histories of trauma
Fear of contact with people
Don’t often feel safe
Other COAG Directions
• NDIS is just one aspect of National Disability
Strategy (‘to increase choice, control and selfdirected decision making’)
• The NDIS focus of the NDIS is on the participant
• Other aspects of the National Disability
Strategy/Agreement and also COAGs MH
sector reform agenda will help to progress
family and carer support service capacity
building, including respite approaches
Thank you for your participation!
To contact Tina Smith: [email protected]
Or for additional information about Hunter trial site activity as this relates to
mental health:
… or ….

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