nuts-and-bolts_CE-Program-Slides - ICTR

Report
Overview of the Community Engagement Program
A resource for faculty, staff, students, and community
Nuts & Bolts of Community Based Participatory
Research Workshop
April 11, 2014
Crystal Evans, MS Program Manager
Presentation Objectives
• Provide an overview of the Community
Engagement Program’s mission, goals, and
resources.
• Determine how the Community Engagement
Program can help you
Community Engagement Program Team
Faculty
– Lee Bone, MPH, BSN, Associate Professor, JHU-SPH
– Hae Ra Han, PhD, Associate Professor, JHU-SON
– Pamela Ouyang, MBBS, Professor, JHU-SOM
Staff
– Crystal Evans, MS, Program Manager
Community Research Advisory Councils
– Johns Hopkins East Baltimore
– Johns Hopkins Bayview
Community Engagement Program
Mission
1. Build the capacity of researchers and community members
to conduct community-engaged research.
2. Create a forum for community members and researchers to
collaborate on research activities.
3. Support community driven research and outreach
4. Enhance the dissemination of research to practitioner and
lay communities.
Community Engagement Program Activities
Activity
Goal
Impact Measure
Consults
Trainings
Advisory
Councils
Provide assistance to
faculty, staff, students on
CE research projects
# of consultations
6 and 12 month surveys
(Self reported status of project;
funding, IRB approvals)
Build the capacity of
faculty, staff, students,
and community to
collaborate on research
# of attendees
Surveys
(Self reported knowledge; use of
info on projects)
Promote community &
researcher collaborations
# council driven projects
Surveys
(Membership satisfaction surveys)
Community Engagement Consulting Service
Impact
# of consultations: Served 800 individual research teams over 6 years
# consultations conducted 2012-2013: 25
# 6-12 month follow up surveys: 10
Follow up Survey Findings
All respondents were very satisfied with consultation
Most common reasons for consultation were:
• Feedback on grant prior to submission;
• Feedback on project after funding
• Identifying community partners
80% reported applying feedback to project; Respondent comments;
• “Included feedback in grant and got funding”
• “Changed interview questions so they were easier to understand”
• “Revamped advisory board; developed bylaws; recruited members”
• “ Invited senior center directors to serve as community partners.”
Community Engagement Consulting Service
List of Consultations 9/2013-2/2014
Project, Investigator
Service, Impact
1. Neighborhood Influences on Healthy Eating
Shari Waldenstein, PhD, University of Maryland
Survey Design
IRB Approved
2. Patients Views of Patient Centered Research
Nancy Kass, ScD, JHU School of Public Health
Survey Design
IRB Approved
3. Hypertension: Comparative Effectiveness Study
Steven Schulman, MD, JHU, School of Medicine
Grant Prep
Grant Submitted
4. Older Adults Driving Study
Vanya Jones, PhD, JHU School of Public Health
Co-Investigator
Referral
5. Treatment Preferences of Patients with Diabetes
John Bridges, PhD, JHU School of Public Health
Grant Prep
Grant Funded
Community Engagement Program Trainings
Event
Goal
Impact
Nuts & Bolts of
Community Based
Participatory Research
Introduce CBPR
principles and
methods; build
knowledge of CBPR
150 attendees
Main Survey Findings
- Day of event: 95% reported
increased knowledge of
CBPR
- 6 month follow up survey:
70% used knowledge on a
CBPR project
Understanding &
Evaluating Research:
Community Advisory
Board (CAB)Workshop
Introduce research
methods and ethics
to individuals serving
on community
advisory boards
35 attendees; affiliated with 10
boards
Main Survey Findings
- Day of event: 75% reported
increased research
knowledge
- 3 month follow up: 60%
used knowledge as part of
CAB work
Community Engagement Program Training
Attendee Affiliations
External Audience
•Alliance of Community Teachers
•American Public University
•Baltimore City Health Department
•Baltimore City Schools
•Black Nurses Association
•Community Health Initiative
•Health Leads
•Howard University
•International Rescue Committee
•Liberty University
•Loyola University
•Men and Family Health Center
•Morgan State University
•University of Maryland
•Safe and Sound
•Y of Central Maryland
Internal Audience
Johns Hopkins Centers & Institutes
•Alzheimer’s Research Center
•Center to Eliminate Cardiovascular Disparities
•Center to Reduce Cancer Disparities
•Center for Urban Environmental Health
• Urban Health Institute
•Student Resource Center
Johns Hopkins Schools
•Business
•Education
•Engineering
•Medicine
•Nursing
•Public Health
Community Research Advisory Council at East Baltimore
Year
Timeline
2009 Formed as part of the Community Engagement Program
Initial focus on ethics & safety
Designated advisor to the IRB on exception to informed
consent studies and projects impacting community
Reviewed 5 exception to informed consent studies
2010 Mission revised by members to reflect commitment to
increasing community trust and involvement in research
Bylaws developed: term limits, roles, decision making process
2011
Committees formed to guide: Board Development,
Community Education, and Research Reviews
2013
Committee Chairs Elected
Community Research Advisory Council at East Baltimore
Committee Accomplishments
Board Development
Maintain active, engaged, & diverse membership.
Major Accomplishments
•Recruited new members
•Organized new member orientations &trainings
•Developed &administered member satisfaction survey
•Recommended strategies to enhance member satisfaction
•Helped develop bylaws that guide how C-RAC business
Research Review
Provide community input on research projects and policies.
Accomplishments
In 2012-2013, conducted 5 research reviews.
- Hepatitis C Study
- Family Health History Study
- Treatment Preferences of Patients with Diabetes
- Use of Community Engagement to Improve Health
- Use of Patient Health Info to Recruit Study Participants
- Conducted survey to measure impact of research reviews
Community Research Advisory Council at East Baltimore
Committee Accomplishments
Community Education
Provide information about health issues facing the local community and
Hopkins research related to those health issues
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Major Accomplishments
Partnered with 4 churches to develop & conduct survey to identify
research priorities of congregation & community members.
Clergy & health ministry leaders led data collection
Survey completed by 847 people.
Johns Hopkins researchers presented on the top health priorities
High Blood Pressure, Heart disease, Diabetes, and Asthma.
Faith and Community-Based Partners
Memorial Baptist Church
New Shiloh Baptist Church of Turner Station
St. Martin Church of Christ
Zion Baptist Church
Community Research Advisory Council at East Baltimore
Founding Partners
Community
•AARP
•Alzheimer’s Association
•Baltimore City Schools
•Baltimore City Health Department
•Civic Works
•Environmental Justice Partnership
•Family and Children Services
•Light Health Foundation
•Mental Health Association
•University of Maryland School of Medicine
•Sojourner Douglas College
•The Door Urban Leadership Foundation
Johns Hopkins
-
Johns Hopkins University School of Medicine
Center to Eliminate Cardiovascular Health Disparities
- Office of Diversity and Cultural Competence
Johns Hopkins University School of Nursing
Johns Hopkins University School of Public Health
- Berman Institute of Bioethics
- Center for Urban Environmental Health
- Department of Health, Behavior, and Society
Community Research Advisory Council at Bayview
Year
2011
Timeline
Formed to create a forum for community members, faculty,
and staff to discuss Bayview Research
At inaugural meeting participated in focus group to identify
community perceptions of Bayview research
- Noted that local residents willing to participate
- Did not understand why research was conducted
- How to access research opportunities or findings
After meeting, Council decided to focus on educating local
residents and patients about the research process
2013 Formed committees: Board Development, Community
Education, and Research Review
2014 Planned Activities: Revise Mission, Recruit New Members,
Identify research projects for Council to work on
Community Research Advisory Council at Bayview
Major Accomplishments
2012
• Developed clinical research booklet
• Distributed at 20 community event
• Posted on Bayview Website
• Plan to modify for East Baltimore campus
2013
• Helped revise Trials at Bayview Website
• Advised to use less words; more photos
• Organize studies by health condition
• Feedback was incorporated site
Community Research Advisory Council at Bayview
Founding Partners
Community
•Angelesea to Kane Streets
•Bayview Business Association
•Baltimore Public Defenders Office •Dundalk Renaissance Corporation
•Baltimore Guide Newspaper
•Healthy Community Partners
•Baltimore Medical Systems
•Zion Baptist Church
Johns Hopkins Bayview
Institutional Review Board
Office of Community and Government Relations
Community Health Library
Pastoral Care
Public Affairs and Communication
President’s Office
Community Engagement Program
For more information contact
Crystal Evans, MS Program Manager
[email protected] or 410-550-2281

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