Document

Report
Barriers to research participation
Diagnosis of Depression in People with
Intellectual Disability
Jennifer Galea & Teresa Iacono
Centre for Developmental Disability Health Victoria
Monash University
Beyond Blue…
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Diagnosis of depression in people with
intellectual disability
Increase direct support worker and GP
awareness of depression in adults with
intellectual disability
Provide a tool that will help direct support
workers to gather information needed by the GP
Assist GPs in identification and treatment of
depression
Tasks
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Complex project requires ‘wading through’
complex explanatory statements
Obtaining proxy consent sometimes
difficult
Supervisor’s permission required in order
to participate
Completion of detailed forms
Collaboration
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Liaising with GP sometimes problematic
Quality of interaction dependent upon
previous relationship
Experiences of “Shooting the messenger”
Communicating with other staff members
and professionals
Practical issues
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Getting clients to assessments
Staffing issues/backfill
Casual staff attending appointments
Assumptions that support workers have a
detailed client history
Relationship with family/significant others
The Report
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Understanding it
Following through on recommendations
Service gaps
- BIST waiting list
- Lack of local services
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Missing information
Knowledge of limitations of the study
- Crisis point
-What happens beyond the assessment?
Value of Assessment?
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Will other practitioners use information?
Will it help you argue for services/extra
funding?
Is it difficult to follow up on
recommendations?
Providing evidence for what support
workers already know?
Case for diverting resources to particular
areas?
How do Direct Support Workers
Benefit from Being in the Study?
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Access to a service – at least for an assessment
Strategy for collecting information that will be
needed by the GP
Information about their client with intellectual
disability – increased understanding about
behaviours, symptoms etc.
Acknowledgement of difficulties faced (?)
Recommendations about what can be done and
potential services (?)
Others …..
Further Information
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For more information about this study
contact Jenny on 9567 1522 or at
[email protected]
For further information about the CDDHV
visit our web site:
cddh.med.monash.edu.au

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