The benefits of user led organisations in delivering services

The benefits of user led
organisations in delivering services
Tess Mc Manus
Strategy officer –Inclusion London
Ambassador for the Office For Disability Issues –
Strengthening DPULOs
What's a DDPO and what do they do?
• Disabled peoples organisation (DPO)
• User led - “run for and by” disabled people – this is
important because… we are highly skills in “try it
another way”
• Provide a range of services across London, including
advocacy, info and advice, direct payment support,
training, placements for social workers, user
engagement, consultancy services ….
Who thinks DDPOs are important
and why?
 The Department of Health: ‘Improving
Life Chances Report’ that states: Each
local authority will have a ULO by 2010.
• The Office for Disability Issues: Its
strengthens DPULOs, via funding and the
support of Ambassadors from across the
Why are DDPOs needed?
• Disabled people still experience systematic
health inequalities in accessing an receiving
appropriate treatment.
• DDPOs can reach communities, engage and
deliver. Reaching out to groups of disabled
people eg deaf people, that statutory
agencies find it hard to do.
Success to-date
• We have seen positive results for the health
and wellbeing of disabled people where, PCTs
have engaged and work in partnership with
Disabled Peoples organisations
• EG: PCT commissioned an “Improving health
and wellbeing for Disabled People” program,
over a period of two years, with significant
positive outcomes.
Benefits of working with DDPOs
• Professional and personal experience of the issues equals an holistic,
efficient and effective service.
• Linked in to local disabled peoples communities
• Skilled and successful in achieving positive outcomes for disabled people
• Expertise and experience have been developed though funding and
support from:
• The Department of Health (and the Department for Civial Society and the
Office for Disability Issues.Have been previously demonstrated through
Partnership Boards – the role of DDPO is recognised by the dep health and
office for civil society – funded all the ulo develop and sustainability to
deliver working locally - more focus on the department of health
• Value for money (OPM research)
Inclusion London's Role
• To support the development of a robust DPO
sector well placed to deliver within this new
– Supporting the statutory sector, wider voluntary
sector to engage with DDPOs as partners and
– Supporting the continued development of DPOs.
– Added Value - measuring it in £s and pence.
Office for Disability Issues Role
• To promote the value of Disabled Peoples
User led organisations to be more
sustainable by supporting them to:
– Represent disabled people
– Develop new structures
– Develop services which can be commissioned
Going Forward – Concerns?
• How do we ensure that this learning is not lost?
• How do we ensure that we build on this learning?
• How do we ensure that those leading on the
development of these new structures understand
what a “user led” organisations is and why this factor is
• How do we continue to develop the capacity of user
led organisations “to get to the table” and “get heard”
Going Forward – Opportunities?
• How do we work as individual organisations, as part
of the wider voluntary sector to get heard?
• How to we capitalise on the “explicit duty to reduce
inequalities” and shoe horn our way in where there
is policy guidance only?
• How do we help organisations to understand what a
user led organisations is and why its important to
CCGs . Healthwatch in achieving their outcomes?

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