[email protected], now and the future

Report
Enabling the national digital agenda:
[email protected], now and the future
James Ferguson
Consultant Hepatologist
QEHB
Birmingham
The idea
• Patients often request to see their letters and results
• QEHB has advanced electronic systems; results , letters and
electronic prescribing
• Patients often travel great distances for care and have
multiple providers
• Most patients access and use the internet for many services
Support
• The medical director and chief executive (key)
• Informatics team
• IT department
• Patients
• Colleagues
Pilot phase
• Initial pilot of 12 patients with liver disease (2011)
• Developed in conjunction with the patients
• Development group included clinician, patient, IT, informatics,
communications team
• Pilot funded by
Roll out
• Business case presented to board
• Approved
• Project group (clinician, patients, IT, informatics and
communications team)
• Clinical group
• Went live August 2012
• 4000 users across a range of specialties
Key Functionality
Patients can view
• Letters (including GP and
external provider letters)
• Blood tests (including GP
results)
• Information relating to their
condition
• Contact details
Patients can enter
• Diary information
• A biography
• Letters/ blood results for
viewing by clinical team
• BP
• Weight
• Blood sugars
A digital challenge
• In line with the governments information strategy
• ‘Information about me and my care’
• Key ambition
• A change in culture and mindset, so that our health and care
professionals, organisations and systems recognise that the
information in each of our own care records is fundamentally
about us – and so that it becomes routine for us to be able to
access our own records online.
Future developments
• Virtual clinics/consultations
– in line with digital first initiative
• Care plans and competencies e.g. dialysis patients
• Teleheath
– In line with 3 million lives initiative
• Research version
Evaluation and Research
• Key performance indicators regularly monitored by project
group
• Patient and clinicians evaluations have been performed
• The system is part of 2 research grant applications
• It has not yet been formally evaluated in a research setting
Can it be adopted elsewhere?
• Yes
• It requires basic building blocks
• Electronic labs system
• Electronic letters
• It requires commitment from trust at senior levels and
investment
• Initiated by a clinician
• Developed in conjunction with IT and patients
• 4000 users after 1 year
• In line with government policy
• Future developments
• Can be adopted elsewhere

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