VAGUS NERVE STIMULATION FOR MEDICALLY REFRACTORY …

Report
Reference Center for Refractory Epilepsy
Laboratory for Clinical and Experimental
Neurophysiology
Creating a website as a tool for free
exchange of information among medical
research groups and researchers.
Paul BOON, Kristl VONCK and Pieter CLAEYS
Clinical and Experimental Neurophysiology Laboratory, Department of Neurology,
Ghent University Hospital,
Belgium
Context
• Traditional purpose(s) of website:
– Source of information for customers and
professionals (presenting products, services,
projects, staff, researchers, advertising events,
publicity and commercials, …)
– Communication platform; indirect versus
interactive
– Administrative and scientific management of
meetings
Context
• More recent applications:
– Publishing research (electronic versions of paper
journals, full electronic journals)
– Providing access to research data that can be
downloaded directly
http://www.neuroepigroup.com
• Website of a medical research group
• Presenting clinical programmes, services and
staff
• Providing information on field of interest for
general public and professional users
• Presenting research group, c.v. of
researchers, projects and collaborations
http://www.neuroepigroup.com
• Providing direct access to published
abstracts, articles, thesises and presentations
of the research group
• Providing platform for data exchange and
discussion with collaborating research groups
Problems
• Public exposure of medical professionals
(deontological considerations and Medical Council
regulations)
• Copyright (transfer) published manuscripts
• Information embargo during time between
acceptance and publication of manuscripts
• Conflict between publication and patenting process
• Protection against uncontrolled copying
• Different levels of access and confidentiality for
different users
Conclusions
• Need for more specific regulations for
physicians with regard to the internet
• Need for new copyright regulations with
regard to electronic media
• Need for specific information and guidelines
for websites used as platforms for scientific
interaction between researchers
Epilepsy Research Group Ghent University Hospital
• Clinical and Experimental Neurophysiology Laboratory (Heymans Institute)
Stefanie DEDEURWAERDERE, Pieter CLAEYS, Robrecht RAEDT,
Leen SEYS, Tim DE SMET, Kristl VONCK, Paul BOON
• Neuroradiology -MR Unit
Eric ACHTEN, Karel De BLAERE, Pieter VANDEMAELE, An THIELEMANS
• Nuclear Medicine - SPECT – PET
Koen VAN LAERE, Rudy DIERCKX
• Experimental Neurophysiology and Signal Analysis
Peter VAN HESE, Michel D’HAVE, Rik VANDEWALLE, Ignace
LEMAHIEU
• Reference Center for Refractory Epilepsy – Department of Neurology
Paul BOON, Lutgard GOOSSENS, Kristl VONCK, Michel D’HAVE,
Geert MICHIELSEN, Liesbeth DE GROOTE, Veerle DE HERDT,
Jacques DE REUCK, Nicole BLANCKAERT, Kathleen ONGENAE,
Annie WEYMEERSCH, Alice DEWILDE, Monique THIENPONT,
Tania HELLEPUTTE and Neurology nursing team
Ghent University Hospital
•

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