Lack of multi-agency working and coordination
Lack of a holistic approach
Lack of information for children and families
Lack of attention to the needs of the young
Lack of appropriate services to transfer to
All research indicates an early start is beneficial –
no later than year 9 (13 – 14 yrs.)
Young people and families need to take a lead role
Important to make use of Person Centred Planning
The plan needs to focus on outcomes and actions
The plan should focus on 4 pathways
Employment / Education / Activities
Good health
Developing friends, relationships and community links
What money do I have for my support
Who can help me make decisions
Who do I want to help me put my plan
What’s working in my life right now. What’s
not working
Who am I
What would be a great day for me
What would be an awful day
What would be the best ever future for me
What is most important to me
How can people support me well
How can we communicate
How do I keep healthy and safe
From Sept. 2014, Education, Health and Care Plans (EHC)
come into force, which can start at birth and potentially
continue to age 25yrs.
There must be a focus on transition and preparation for
adulthood from Year 9 at the latest.
From April 2015, if care and support needs are likely
post 18yrs, there will be a duty to complete a Child’s
Needs Assessment (CNA)
EHC plans and CNAs should include an indicative
personal budget
Schools and colleges should raise the career
aspirations of their SEN students and
broaden their employment horizons. They
should use a wide range of imaginative
approaches, such as taster opportunities,
work experience, mentoring, exploring
entrepreneurial options, role models and
inspiring speakers.
Areas appear to be retaining their previous
approaches to eligibility.
There are three main points of difference:
there is more emphasis on gathering information from
across services at the point of referral
the family is much more involved through the coordinated assessment and planning stages
it produces a plan which is more outcome focussed
and family centred, having involved the family much
The Preparing for Adulthood programme
(PfA) is funded by the Department for
Education as part of the delivery support for
the special educational needs and
disability (SEND) reforms. It
focuses on young people aged 14 to 25yrs.
1.16 million 16-24 year olds are not in
education, employment or training
A commitment to provide
dedicated support to help disabled students
participate and succeed in further education
provide opportunities for workplace based
learning through supported internships, work
placements and the use of supported
Draws on the experiences of Pilot Projects
during 2012/13
Similar to an apprenticeship but:
A higher level of support
A longer programme
No entry requirements
Can retain EHC plan while participating
Financial sustainability is the greatest challenge
facing local public services – during the current
Parliament, local government’s core funding will fall
by 40%. The reforms introduced by the Bill need to be
fully costed and funded as New Burdens. This means
funding both for preparing for implementation in
2014/15 (for which a £70 million SEN reform grant
has been allocated) and supporting ongoing running
costs (money for which will be allocated through
future Spending Reviews).
New requirement for LAs, health and care
services to commission services jointly, to
ensure that the needs of children and young
people are met.
A new duty on health commissioners to deliver
the health elements of EHC plans.
Option of a personal budget for families and
young people with a plan, extending choice and
control over their support.
LAs & CCGs must work together to commission
services for children with SEN both with and without
Education Health Care (EHC) plans.
Joint Commissioning Boards will be created to
Secure EHC assessments
Secure education, health & care provision
Agree Personal Budgets
Once an LA confirms a plan is necessary, a parent or young person can
request an EHC personal budget - an amount of money identified to
achieve agreed outcomes. It may be managed in three ways:
The local authority manages the funds and
commissions the support specified in the EHC
plan (sometimes called “notional arrangements”).
The funds are paid to a third party to manage on
behalf of the parent or young person.
The funds are paid to the parent or young person
as a direct payment, and they buy the provision
specified in the plan.
Early resolution –
The expectation is that LAs & CCGs work together
to resolve disputes
When this fails parents/YP can appeal to SEND
They will then be offered mediation
LAs must arrange for Disagreement Resolution
Services to be available
A duty on local authorities to publish a Local
Offer is being brought in by the Children and
Families Bill.
The Local Offer must set out all the services
available for disabled young people with or
without an EHC Plan across education, health,
care, transport, employment, housing and
community inclusion.
Local authorities must publish, in one place, information
about provision they expect to be available in their area
for children and young people from 0-25 who have SEN
The local offer has 2 key purposes:
To provide clear, comprehensive information about
support and opportunities available
To make provision more responsive to local needs
and aspirations by directly involving children & YP
with SEN and parents & carers in its development
The presumption of capacity
All practical steps must be taken to help people make
their own decisions before determining a lack of
People have the right to make what others might
consider unwise of eccentric decisions
Anything done for or on behalf of a person who lacks
capacity must be done in their best interests
Any decisions should be based on the least restrictive
of their freedom and rights
Understand the information given to them
Retain that information long enough to be able to
make the decision
Weigh up the information available to make the
Communicate their decision – this could be by
talking, using sign language or even simple muscle
movements such as blinking and eye or squeezing a
Further Information and resources
• Preparing for Adulthood resources on person centred transition:
• Information from the pathfinders on EHC Plans and assessments:
• Information from the pathfinders on personal budgets:
• In Control:
• Personalising Education:
• Think Local Act Personal:
• Moving on Well pack:
Further Information and resources
SCIE Research briefing 4: Transition of young people with physical
disabilities or chronic illnesses from children's to adult's services
Foundation for People with Learning Disabilities – Transition
Transition Information Network

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