St Oswald’s Hospice Gosforth My boss said ...... “do you fancy a day out in London?” When she really meant.......... Carole To The Child Minnie born November 2010 Parents : Donald – Teacher Sister: Daisy – Teacher Maisie born 2006 Minnie suffered from severe hypoglycaemia in the neonatal period Diagnosis/Problems • • • • • Brain Damage Visual Problems – registered partially sighted Epilepsy Constipation Gastrostomy Professionals Involved -1 GP Consultant Paediatrician Consultant Community Paediatrician Consultant Neurologist Consultant Gastroenterologist Consultant Ophthalmologist Health Visitor Children’s Community Nurse School Nurse Epilepsy Nurse Specialist Professionals Involved -2 Social Worker Sensory Support Staff Key Worker Private Nursery Teaching Staff Physiotherapist Occupational Therapist Speech and Language Therapist Dietician Continuing Care Assessment • • • • • • • • • • • • Behaviour Communication Mobility Nutrition Continence Skin Psychological / Emotional Breathing Medication Seizures Sleep Play Support • CAF through Child Development Team • Initial Support through Sure Start groups • Private Nursery • Family Issues • Ongoing Pressures • Pathway to St Oswald’s • Outcomes Need to see the whole picture!