Creating awareness and networking through capacity building Lynette Janse van Rensburg Background Brits-Hartbeespoort Hospice is a NGO situated in the North West Province of Bojanala Platinum district in Madibeng (sub-district) that offers palliative homebased care. Who Cares? Brits-Hartbeespoort Hospice do!!! We grab every opportunity to create awareness, because only with networking and capacity building we will be able to reduce the lost to follow up With everything we do we want to spread the message of Hope and palliative care to improve patient outcomes Inner values influence all around you Building Compassionate Communities are only possible by: Strengthening the health care system by ways of collaboration with other partners in the community Taking hands to build a caring community with one goal: TO IMPROVE RETENTION IN CARE AND THE LOST IN TO FOLLOW UP Our priority is • Bringing awareness of palliative care to the local-, rural- and farming communities The challenge is: • To raise effective awareness in different areas of the community to improve patient outcomes once on the program and to reduce the lost to follow up The aim of this presentation is • To highlight the teamwork approach between Brits-Hartbeespoort Hospice, Agri-AIDS, DOHmobile clinic and the Madibeng Main Clinic in addressing TB and other life-limiting conditions as well as promoting the I ACT program (Integrated Access to Care and Treatment) Methods • We have the opportunity to access the farming community by partnering with AgriAIDS • To collaborate with Madibeng Main Clinic, DOH Mobile Clinic to ensure continuum of care • By creating awareness as a team on Health Calendar Days (International TB Day, World AIDS Day, Hospice Week, World Health and Palliative Care Day, etc.) Outcomes • Keep the partnership going through personal relationship and nurturing. • Awareness to improve patients outcomes and retain referrals • A strong and workable partnership will make a difference one patient at a time • Can one person make a difference? • Yes, but together we can do more in raising awareness of palliative- and hospice care Recommendation • Ongoing communication and feed back to ensure continuum of care • Together we can do more in building compassionate communities in sharing information and knowledge of palliative care to relief suffering to those infected and affected by life-limiting conditions Lessons learned • • • • • NEVER GIVE UP You can always do something in the way you care Achieve small goals to improve patient outcomes There will be obstacles and challenges But our main focus is to bring hope-peace-comfort and enhancing dignity for those suffering • Make it a workable plan for all • Be visible in your community • Hold vast to your vision of palliative care for all The access to Palliative care • Is a light of hope that brings a smile to a suffering patient by giving much needed information regarding the illness, given with care, time and trust. • Teamwork is of great importance. You have to listen with loving ears to understand how to help and extend our practice of palliative care Bricks in building a caring community • • • • • • Compassion Commitment Loving care Enthusiasm Passion BECAUSE WE BELIEVE: “THERE IS NO-END TO CARING” Collaboration with the Madibeng Main Clinic International Nurses day International TB day Evidence of awareness in our area Grab every opportunity to nurture relationships David Mathe (DOH Mobile Clinic) is our Palliative Care Champion World AIDS Day Awareness at our Charity Shop Holistic Palliative Care for all Compassionate care for all A loving and caring partnership with the Clinic AWARENESS • With every event we create an opportunity to raise awareness for the I ACT program and TB screening • We had the opportunity to showcase our hospice at the Marikana Wellness Day through an extended invitation from DOH for all North West Hospices. Graceland Community Raising awareness and bringing palliative care to the community “I ACT” sessions during lunch hour Bokfontein Strive to make a difference Educating the community I ACT • When “I ACT” was introduced we realised it is the perfect opportunity to start a Support Group during lunchtime to share information. It was a safe environment during lunch time to gather information or ask questions. I ACT Creating a caring community through awareness These are the advocates for new referrals and they are the ones that will call us and report very sick people in the community. Taking hands with Agri-AIDS Sharing information with the farming community Teamwork makes everything easier I ACT at the farming communities I ACT • The I ACT program is the way forward to encourage people to get tested and for the infected to get referred and get support and information from hospice I ACT Success story • We can confirm that all our clients who went through the I ACT program are continuing their follow-up appointments and treatment and feel free to come and ask for guidance or help at any stage Strategic awareness is possible in any setting Training Awareness TB CAMPAIGN Enthusiasm opens doors Taxi drivers listen to information TB AWARENESS Education and raising awareness Making a difference in our community TB AWARENESS International TB Day 2014 working hand-in-hand with the Taxi drivers at the Taxi ranks where much needed information was distributed Passionate carers A one stop service by taking hands with the DOH Mobile Clinic and Agri- AIDS VALUE OF PARTNERSHIPS • Improved patient outcomes • Learn from each other • Bringing awareness to the local-, rural and farming communities regarding palliative care • Support and assist comprehensive care • With limited resources you can do more together World Hospice and Palliative Care Day 2013 in Bokfontein We do care! Amos and his family CONCLUSION • As a team and individual you need to have the ability to listen with your ears and to take constructive criticism and let it mould you in an effective palliative and hospice care giving organisation. • Our vision of creating, raising and bringing awareness in our community is a challenging learning experience OUR CHALLENGE TO ALL…. DARE TO CARE!