1 3 IDENTITY YOU ARE NOT PARKINSONS Retreat 4 MEET TEAM BAUMANN 5 President of Healthy Food, Exercise & Caring Bernadette Baumann 6 President of Emotional Support Ollie 7 THE PROVERBIAL BUCK STOPS HERE: I am ultimately responsible for my own well being. 8 AND YOU ARE FOR YOURS 9 10 11 RESEARCH • New procedures • New medications • What works for others • What has not worked • The best doctor • The emotional stages 12 THE EMOTIONAL ROLLERCOASTER OF PARKINSON’S 13 14 15 16 17 18 WAKE UP CALL TIME TO “GET OVER IT” For the best 19 HEALTHY FOOD & DRINK Food Matters - Forks Over Knives Food, Inc. - Hungry For Change Vegucated 20 EXERCISE • Beyond Your Comfort Zone • Every Day (almost) • Sweat, Stretch, Strengthen 22 YOUR TRIBE IDENTIFY YOUR SUPPORT SYSTEM • Family and other Caregivers • Health Care Professionals • Parkinson’s Associations • Exercise Partners • Financial Planners • Attorneys (if necessary) Employment – Benefits – SS Disability • WHO ELSE??? 24 My Malaysian Tribe 26 ATTITUDE • Positive Attitude • Inspiration is Everywhere rock – cheer – worst thing Tori story 27 29 SILVER LINING • Use our new found “abilities” • Help others - new perspective on life Obituary • Develop lasting friendships in the PD community • Humbling Experience: Become more loving, kind and compassionate (I was an A…………) • Express appreciation to our care partner love you 30 CARE Partners Experience DISBELIEF – DENIAL ISOLATION – SADNESS AWKWARDNESS - ANGER FEAR – DEPRESSION - SHOCK CAN YOU SAY “COURAGEOUS” 31 Amazing Life WE have the POWER to have an Amazing Life: the HIGHEST QUALITY OF LIFE that we can POSSIBLY HAVE. TAP INTO THAT POWER. 33 Life ain’t always beautiful Sometimes it's just plain hard Life can knock you down, it can break your heart…. But the struggles make you stronger And the changes make you wise No, life ain’t always beautiful But it's a beautiful ride What a beautiful ride. - songwriter Gary Allan 34 Michael J. Fox Quote “For everything this disease has taken, something of greater value has been given sometimes just a marker that points me in a new direction that I might not otherwise have traveled.” 35 Michael J. Fox Quote “So, sure, it may be one step forward and two steps back, but, after a time with Parkinson’s, I’ve learned that what is important is making that one step count, ….. always ….” 36 ALWAYS REMEMBER "Too often we underestimate the power of a touch, a smile, a kind word, a listening ear, an honest compliment, or the smallest act of caring, all of which have the potential to turn a life around." - Leo Buscaglia 37 FOR THE BEST My mother is still not convinced • BUT look at where I am TODAY office , MJF • And look at how healthy I am TODAY • And now YOU are blessed to know what to do. Someone certainly does work in “MYSTERIOUS WAYS” 38 WHO COMMITS TO LIVING AN AMAZING LIFE?